– He lost control of his muscles

In a shocking statement to the Canadian media, Claudette Dion, the sister of the famous singer Celine Dion, shared details about the difficult situation that the artist is experiencing due to the neurological disease known as rigid person syndrome (RPS). The disease led to Celine Dion losing control of her muscles, which affected her ability to sing and perform on stage.

“Celine works a lot, but she can’t control her muscles,” Claudette Dion explained to Canadian media 7 Jours. The singer’s sister added: “In our dreams and in her dreams, the idea is to return to the stage. In what condition? I don’t know. The vocal cords are muscles and the heart is a muscle too.”

Celine Dion (55 years old) announced her battle against MRS in October 2021, when she revealed that the disease affects her nervous system and causes muscle spasms. This condition forced her to cancel concerts in Las Vegas (USA) in the same year. In December 2022, illness led to the cancellation of the European tour scheduled for 2023, thus canceling their entire world tour.

The artist, who has won two Oscars and multiple Grammy Awards, expressed in a statement in December 2022 that the cramps affect all aspects of her daily life, including her ability to walk. In addition, he revealed that his vocal cords were affected, which prevented him from singing as he used to do before.

Claudette Dionne also highlighted one of the challenges her sister faces: the limited medical research on Stiff Person Syndrome, because it affects so few people around the world. The Dionne family faces the difficult task of finding solutions amidst the rarity of the disease.

This incredible testimony highlights Celine Dion’s courageous fight and highlights the importance of raising awareness about rare diseases, as well as the need for more research and resources to address the unique challenges she faces.